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Tell me your dreams,
Tell me what makes you tick.
Tell me what makes you stay awake late at night,
Tell me what takes you to cloud nine and what makes the stars shine a bit brighter.
Tell me your dreams…I will show you people who’ve mastered the art of dreaming

Perhaps the best thing about my career is meeting new people. But then this is quite ironic for an introvert because meeting people is such a struggle for me. I have to contemplate the whole thing a million times before I finally make up my mind to meet the person i’m to meet. Yet when I think of it, coming out of my shell and my comfort zone has rarely ever made me regret. All I ever had to do was filter their objectives, my objectives, their agenda, my agenda and for those I did eventually meet, I learnt a lot. My perspective has really changed a great deal from listening to people, to their stories, to their dreams…oh, their dreams, you see the spark in their eyes as they tell you their goals and it is just amazing. I met such a lady yesterday and not even my words, can explain the enthusiasm in her voice as she narrates her dreams.

Amina Yusuf is the typical Nairobi Muslim lady; learned, focused, super-ambitious, determined and brave. While she was leading a comfortable life in Nairobi with her three children and husband, in her own home, with a good career, she decided to leave it all to come to Mombasa. The main aim of the migration was to get her children into tahfidhul qur’an and give her children an ideal childhood in Islamic neighbourhood. Upon arriving here, she joined madrasa for one year and up’d her education. It was while she was in madrasa that she noticed how the girl child in the neighbourhood were being left behind; uneducated, child labour, poverty issues, family issues, neglected orphans…and she decided she must make a move.

Without over-thinking, she decided to start an education centre by the name Al Reyhan girls education centre with the little amount she had. She went for shopping and started buying the basic necessities she would need for herself and the girls. She had a special target on which girls she needed to join her centre so she would personally move from one house to another, interacting with family members, befriending them without anyone knowing her intention. It was only after weighing each family’s situation is when she’d recruit the girls; orphaned girls, neglected girls, girls from very needy families who can’t afford to take their children to school, girls who live with their old grandparents with no one to take care of their education needs…until the number of girls got to 97, 52 of which are boarders.

The school system is such that, the entire morning the girls are taught tahfidh and basic Islamic knowledge then in the afternoon, they have the secular subjects. Amina wasn’t going to let her girls feel any less than fellow girls in academies. She would fish for money in her own ways and buy them books, stationary, colours, pads for the older girls, she’d cover the books herself, ensure they eat good food with a fruit at least each day and meat once a week. She’d take them to outings occasionally, give them pep talks, go play with them at the beach early mornings, interact with them and at these times, she says, is when you get to know of the deepest secrets of the children.

 

“I want to mould and shape these girls into ambitious educated women. I want it that some day, the girls at my centre can have quality education such that there is no difference between them and the students at Light Academy. I even told my thirteen year old daughter about my dream and my goal; that if I die like right now, I want her to continue with my legacy because this is the legacy I want to leave behind,” Amina says.

“It’s been tough for us here. I run this place entirely by myself and by God’s grace. Sometimes I push family and friends to chip in but otherwise we have no other way of income. I have rented these two buildings; each having three rooms. I stay in one of the rooms with my three children too. We currently just have three beds, the rest we just lay mattresses in this one room and the girls sleep here. It gets too hot and stuffy sometimes, but what can we do…we need to survive here until we get a bigger place.”

One room being her own and for her three children, the other two being classrooms in one house. The other house which also has three rooms; one belongs to the caretaker and teachers who help around, the other room contains the three beds while the last room is the classroom during morning hours and the place to sleep in the night. I can’t even come to think of how these 52 girls fit into the two tiny rooms.

“We’ve had pretty bad days too. We once had a tv, we had to sell it at some point. There was a time we were all locked inside the house because we had really delayed with rent. The agents wouldn’t let us out. I had to frantically start calling friends and family for help, but alhamdulilah some good group of friends managed to raise the amount in good time and saved us. And sometimes, we have good Samaritans coming by to greet us or bring us some things; sometimes it is university student groups, sometimes just individuals or charity groups. We really appreciate it but then sometimes we have nowhere to store the things. Like someone may bring two cartons of milk and we have no freezer to store. Sometimes I go to neighbours and leave a few in different homes but then it gets to a point I feel burdened to ask that from them anymore. I can’t keep doing that forever. Sometimes people don’t say they are fed up but you can feel it yourself that you can’t ask for favours everyday. So I end up sharing it to the day scholars too so that the milk doesn’t spoil. Or sometimes someone brings a goat, we slaughter and have a feast for lunch and dinner, but since I fear that what remains may get bad, I choose the most needy of families and give them it.”

With all this, Amina still strives to make her centre better and greater.
“As much as I use 8-4-4 system to teach the girls, I decided to give them extra life skills that would help them when they grow up. We have cooking classes at least once a month, tailoring classes, sometimes we make juice, sometimes I come with my small laptop and show them how to use. We have very limited resources but with such a fast developing world, I wouldn’t want them to remain unaware of what is happening around them. I teach them how to be as ladies; the etiquette and manners. I discourage them from going outside past maghrib times (sunset) and sometimes parents come to complain why i’m making the girls be disobedient by refusing to go outside past sunset but I tell them about matters of time and how we need to protect them. I also teach them about women in Islam; the history and of modern world (like Yasmin Mogahed) because if European girls are empowered why not do that for ourselves too? So I give them history lessons of how Muslim women impacted the society. We even have our library we call it ‘maktabatul Aisha’ (Aisha’s library) since she is one of the most educated women in history. We call our sports section ‘Nusaiba’ since she was a brave warrior during the prophet’s time. We call our accounts section ‘khazinatu Khadija’ for she was a successful business woman. And the point of all this is for them to realize the power and importance of a woman in the society. They too can become these women.”

In both two buildings, only three rooms are used for studies. One is the class for toddlers and KG 1. The other room is for KG 2, 3 and class 1. The third room has class 2 to class 6. Every teacher hurdled in a corner with her numbered girls. It is hectic no doubt. Imagine having three teachers teaching different classes, all in the same room. And here, it is like ‘whatever will be will be’. They teach regardless of the limited space to comfortably talk to the girls or for them to bend down to take some notes.

“It’s been 9 months now and I thank God that we have survived until now. Sometimes I sit with these girls and just talk to them. I ask them what they want to become when they grow up and you’d hear one say, ‘I want to get married’. When you ask her ‘why so?’ She says, ‘My family already planned for me to get married to my cousin.’ And this is just a thirteen year old girl. She has no focus, no goals whatsoever because she, the girl child, wasn’t given the knowledge to understand what she is capable of. We have very young children nowadays, as young as 3 who will tell you that they want to be a doctor or a pilot or a teacher. Why then would some girls have such goals in life at such tender ages while other lack any goal at all?”

As we move around and Amina shows me the students of each class, I notice a big girl at KG 3. Immediately Amina says this is class one, I see her quickly sink down and bow her head not to be seen. She is ashamed, I notice.
“What’s her story?”
“Long story. She lives with her step-mum who’s been mistreating her. Sometimes she comes here and slaps her for maybe some minor she hasn’t done or something like that. She’s been neglected, with no education…and she’s been working as a house girl. I didn’t even know that that was her step-mum until lately. Currently, i’m trying to transfer her into our boarding here, so she can study well with a peace of mind. She is just 13 but talk to her and she sounds like 35. She speaks like an adult…”
“That’s what tough life does to you…”
“And there are more of these girls. They need help. They need somewhere safe to go to. There is this young girl here, she’s just four years old but she’s seen a lot. Her mother is a divorcee and a drug addict, she uses bogizi. The young girl has both asthma and sinus. She keeps getting the attacks regularly but the mother is never around or very high…so she stays here with me at boarding. All I want is for her and others like her to have a good life…But I can’t take any more here. I don’t have space for more. We need a bigger place and reach out to more girls.”

Most of the girls come from families with very huge baggage. 60% of the girls are orphans, 30% are needy, 10% are abled. The 10% are the only ones who pay fees which is 1700/= per month. But it is more than worth it because Amina feeds them and provide stationary for them too. We even have break time tea twice a week and porridge three times. Because the aim here isn’t business, it’s to give the students a chance like other children have. So from what the abled students pay is what helps in paying teachers and catering for other needs. By ‘abled’ we don’t mean ABLED. We just mean students who are a bit better than the rest.

I look at Amina and say to myself, ‘This human being right her; she is making a difference.’ I look at her eyes sparkle as she talks of how much she wants to do for the girls, of the sighs between her sentences like she is desperate to reach her goal, of the endless ‘Thank God’…I look at her and marvel. We have made idols and role models from people on social media who do nothing other than make noise, have aimless posts, put up many photos of themselves then call them ‘influential people’. But how did they really influence us? In what did they influence us? Was it ever something meaningful? I doubt. Then there are people like Amina, who’ve sacrificed their good peaceful lives where they could live happily without a worry just to make a difference and bring change in other people’s lives. These are the unsung heroes. The very few who do something great not so as to look great but to create some other great thing. And here now I call for your help to help Amina achieve her dream…

On the 2nd of April, Amina is organizing for a fundraiser food bazaar. She is calling for people to assist her in any way possible. You may donate some food that will be sold, or you may sell your own food on that day then share the profit, or you may just volunteer to help around making the event successful or even come sell any of your other businesses and agree on how to share the profit. The aim of the fundraising is to get money to buy a freezer which is quite necessary for them right now. But there are so many other needs for them.
The girls at boarding sometimes are to go home and they refuse with the say, “Ustadha, at home I can’t have pads. I will just be told to use a piece of clothe.”
So yes, these girls come from very desperate situations you don’t want to imagine. They also need a bigger space/home of their own to move to because that is what will ease a huge burden of rent and congestion. Donate with whatever you can. Volunteer. Or even share this post as widely as possible. Let us make her dream come true. Let us make a difference in these children’s’ lives. The event is also going to a fun day at the same time i.e. a food bazaar plus fun day for children. Entrance is free. Kindly avail yourselves and make this work in shaa Allah.

If you want to assist in any way and would like to talk to Amina, here’s her contact:0797641346/0733341574. God bless you!!

Special thanks to my best friend, Husna, for supporting me in all my projects. God bless your soul always 🙂

Tell me your dreams, I will show you people who have mastered the art of dreaming

CHAPTER ONE

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PROLOGUE

I have met several disabled people in my life; people with a physical flaw, with a scar, with something on them that they are forever going to see when they look at the mirror. When our hearts are crumbling into pieces and our insides are no longer a beautiful sight, we still can wear a huge smile and stand in front of the mirror, turn left and right, admire ourselves and totally ignore our hearts that are screaming, ‘HELP!’ This is quite different for someone with a disability. They see what they lack, EVERYDAY. It is not as simple as having bushy eyebrows or cellulite or panda eyes. It is not something you can simply use concealers on or make-up to cover it up. It is something permanent. Something they have to accept and live with. They sometimes dread looking at the mirror or even looking at people, because it just reminds them what they are missing or how life would be different if they had normal hands, or eye-sight, or legs, or normal skin etc. But from the physically disabled that I have met, there are those that have picked themselves up, those who have an aura of confidence, they send off very strong vibes of self-esteem and pride, they shake hands with a firm grip and whenever you are about to pity them, they remind you of how whole they are despite what you see. Nafisa is one of them.

UNBROKEN WINGS

A January baby is usually a gift for the New Year. It’s a symbol of hope; the undying hope for an ageing couple. And when the baby is a girl, the only girl in a family of three children, it’s a special gift. The over-joyed couple named her Nafisa, a Muslim name which means Precious. Delicate. Gem. She is indeed Nafisa; she is the girl who was born with spina bifida. The baby that struggled to survive, and when you are born with spina bifida, you just have two choices. You either become a victim of your own pity as you wither away or you fight through all the odds to bloom. Nafisa chose the latter.


In the heart-warming city of Mombasa-Kenya, on the 22nd of January 1976, at 5 a.m. at Aga Khan Hospital, a tiny baby girl came into this world. Mrs. Fatema held her baby; Nafisa lovingly as the nurses helped her clean up. But they kept pacing in and out of the room restlessly and worry immediately started sinking in Mrs. Fatema’s head, ‘what is wrong?’

Right then, Dr. Varma came into the delivery room with a rather enigmatic face.

“You wanted a baby girl right? God gave you one,” he said as his lips remained tightly sealed.

“Sorry,” he continued as he held Nafisa to check her. Mrs. Fatema looked at him with puzzlement as the fear in her grew. Before she could ask anything, Dr. Varma interrupted her thoughts, “When is your husband coming?”

“Any time from now. Once he is informed that I have delivered then he will come immediately.”

Dr. Varma nodded before leaving the room, leaving Mrs. Fatema drowning in her thoughts.

Just when Nafisa’s father, Mr. Kutubudin, arrived in the hospital he was summoned in the doctor’s office and was informed that Nafisa’s spine was cracked above her hip area and the nose of her spine was outside. Her condition is called spina bifida. She needed a surgery immediately. The consequence of the operation was that either her lower or upper parts of the body would end up numb; with no feels or movement. But to survive, it was crucial that she undergoes the knife. However, there was one other problem; the doctors were unavailable. There had been a railway accident and the critical situation of the patients required the doctors there. This left them with only one other option; that they out-source a surgeon to operate on Nafisa. Out of desperation, Nafisa’s father agreed and signed the required papers.

Nafisa was operated on successfully leaving the lower part of her body affected. She was alive, that was what mattered most to her parents and for the years to come, they ensured that Nafisa wouldn’t be any less than a normal child. For the first six months of my life, the doctors tried to support my spine with a cast. Her mother was not allowed to breastfeed her until she was six months old. Other people were hardly allowed to touch her because of her delicate condition.

 In Kilifi area near the large and famous Coast General hospital, Nafisa Kutubudin Khanbhai was brought up. Her parents worried what school to take their gem to. Special schools were not any special anyway and in the early 80’s there were not many choices in terms of schools with special needs. They wanted her to lead a normal life like any normal child. Coming to their rescue, Mrs Rosy Ganiwalla who was a teacher then was able to enroll Nafisa into Alibhai Panju School. This was when her journey started; not just as a child or as a student but also as a survivor. Life was not going to be any easy for her in normal school. There was stigma. There was speculation. There were a lot of rumours. None of the other children would easily understand why until the age of 9, Nafisa was still wearing nappies. They couldn’t fathom why such ‘a big girl’ would still get dirty by passing out stool or why she always had to carry an extra pair of clothes everywhere she went to. Slowly, other children stayed away and for those who understood her condition, pitied her, something she didn’t really like.

But how many people actually understand what spina bifida is all about? It was either just the doctors or its victims and at most, the people who had relatives or friends affected with it who knew what it were about. Her hip had a crack and thus had to be operated on. This is what had caused all the health complications in Nafisa. She could not walk unless with her crutches. She could not control the urine and stool unless with medication. She became a victim of strange stares, whispers around her and eventually, stigma.

Something else unexpected happened, Nafisa became a woman at the age of 6. “My white uniform turned red while at school. I thought I had hurt myself. My mother was called in and took me home. I stayed out of school for three days. Later my parents were told that although I would menstruate regularly, there were low chances of ever being able to conceive.”

Adolescence at such an age can be very alarming. Still in diapers, Nafisa was already experiencing the monthly periods. She was already exposed to the world of cramps, breast pain, pills and darkness with barely any light at the end of the tunnel.

“My school deskmate used to make fun of me; talk about how I smelt of urine and waste and how disgusting it was. She wasn’t the only one though but I don’t blame them. We were just kids; barely understanding what is really happening to me. It used to make me sad but I never used to cry about it. This is because I happened to have amazing friends too; friends who supported me since. I had my neighbour Fatema; we used to go to school together and spend time together after classes too. She was the same girl who used to buy me snacks during break period,” Nafisa narrates.

As expected, Nafisa never had much interaction with her class mates. Not everyone was ready to look beyond her disability and her helplessness but still, not everyone totally ignored her. Some few friends really tried to cope up with her situation and helped her whenever she could. During the prayer time, the students would all go to the mosque to pray and getting stares from everyone as she removed her shoes was not a surprise. Yet she learnt to ignore all that and be the strong girl she is. As they say, ‘when they stare, make it worth their while.’

Mrs Fatema would go to her school every day during break time to change Nafisa’s nappy, something even the house girls used to refuse to help with. And whilst her friends played around merrily, she could not take part in any out-door activities.

“Since Nafisa’s birth, my life changed forever. I dropped everything and I had no interest whatsoever in the life out there. My life now revolved around Nafisa. I was always thinking, thinking and thinking. What will I do? What should I do for her? It has always been about her. I wanted her to have a comfortable life. We both wanted that; her father and I.”

Locked away from the normal life her peers enjoyed, Nafisa would soon find herself falling in love with books and movies. Nancy Drew books were her favourite. She would imagine herself lost in a different world, tailing Nancy as they uncovered piece by piece of new clues and evidence for a new mind-blowing case and draw in sharp breath as they discovered, together, something unexpected or find themselves in trouble. She would borrow the books from her friends but those she brought herself, she treasured even more.

So it passed that her free time was spent lost in the imaginary worlds offered by the crisp pages of her books or glued to the screen of their TV watching Tom’s and Jerry’s shenanigans play out. These were her happier moments, she recalls. A bubble all for herself. A tiny one but enough for herself.

Nafisa’s impairment meant that she had to frequently visit her physiotherapist doctor Kishore Adatiya who dedicated her efforts to seeing Nafisa overcome her paralysis and walk on her own. But grit and effort alone wouldn’t be enough. Every six months she had to travel to Nairobi to make her calipers (devices that enable people with motor disabilities to walk and thereby remain mobile) which were being made in Kabete hospital.

At the age of 9, Nafisa started getting persistent stomach aches. The younger of her two brothers took her to hospital where she was told that both her kidneys were infected. She was operated on by a visiting doctor from India. At that time, she was the first and youngest child to undergo that procedure which left her wearing a urine bag (in medical terms known as Urostomy i.e. when a bladder is bypassed or removed, an opening in the belly (abdominal wall) is made during surgery to redirect the urine. The patient is thus unable to control urine coming out so a pouch, which is the urine bag, is needed to collect the urine as it comes out).

“It costs me 7 pounds and 50 cents for every urine bag for Nafisa and the bags were being manufactured in Denmark. The financial costing was becoming heavy on me and her father, and that is when my sister Tara, who lives in the United Kingdom, stepped in to support us in buying the bags. She also raised Nafisa until the age of 6. I didn’t get much support from family but I can’t totally disregard the little much they offered,” Nafisa’s mother says.

Despite all odds stacked against her, she persisted in her pursuit of education. She wasn’t exactly the genius of her class but neither did she settle on being the tail. For her, everything was a struggle but she kept up with the top students as much as she could and never strayed from the top twenty. Her teachers, who mistook her struggles for apathy, complained when she lagged behind in her studies. It was the price she had to pay for wanting to be treated normally, like the rest of her classmates, for trying to prove that her physical handicap bore no effect whatsoever on her ability to learn and think like anybody else. One sentiment she does share was her dislike for maths. “Maths was my childhood enemy, maybe my foe for lifetime.” She would tell you if you prompt her. She would always skip maths classes to the extent that her maths exercise books were literally empty. Her class one teacher was another particularly negative highlight from her early school life. She was too harsh, too rigid; the type to give their seven year old students nightmares. It was from this point, perhaps, that she first learned to hate.

After school every day Nafisa used to go for tuition where she made another friend Naheed. “I remember how we would always carry Jujube (commonly known as ‘kunazi’) to the teacher’s home where she conducted the tuitions. When she got distracted with a phone call or when she disappeared in her kitchen, we would quickly throw the Jujubes into our mouths and act innocent when she is back. Despite everything, I did enjoy my childhood,” She laughs lightly.

It was these kinds of moments that gave her the strength to go on with school life but that was only until class eight when she dropped out. Her medical condition was too heavy on her shoulders and decided to call it quits for school life. Yet still no one could ever forget that she had once won the most disciplined girl award or that she had done her very best to not let her disability or stigma fail her entirely. Of course it did mean she had to give up her dream of being a lawyer but she never gave up hope in life. She decided to accept this situation fast and not dwell on the things that couldn’t be changed. She therefore soldiered on…

———————————————————————————————————————

“Since her childhood, Nafisa, never accepted to be left out in anything just because of her condition. She would always help me out in the kitchen, peeling the potatoes and cutting the tomatoes. She was still that strong girl seating on a table to make her bed, arranging clothes in all the house ward robes and dusting the place. She enjoyed setting up cutlery for events; deciding what plates to be used when the visitors arrived and what cups would best fit. She would anxiously and skillfully choose the appropriate dress for the event with matching jewelries. And whenever there was henna at home, she would always tattoo herself with it. Despite everything, Nafisa loved and lived. She just never allowed her disability become an inability,” Mrs. Fatema, Nafisa’s mother says.

They say, ‘beautiful souls have it the roughest’ and indeed Nafisa had her fair share of ‘rough’. Getting friends was difficult but getting real ones was even more difficult. Her social life was greatly made up of people using her for their own gains, misusing her kindness and forgetting her when she needed them the most. “But I have had life-time friends too. Mariya FidaHussein, Tasneem (my kitty group friend) and Hasanain have been more than just friends, but sisters from another mother. There was Aziz Mustanir too, a brother who came later into my life. These are the people who have been there for me for the longest time; even before I grew into the firm and strong lady I am today,” Nafisa says.

However much darkness overflowed in her life Nafisa still found reason to find happiness and joy in the blessings in her life. She created her best childhood moments from the trips she went with her family and their family friends to Tsavo, Amboseli Park and several other beautiful places that exposed her to that light at the end of the tunnel. Adnaan Bhaiji was the son of Talib Baiji; Nafisa’s father’s best friend. “Adnaan was so charming and naughty and he always knew how to make me happy. He always came along to the trips in the wild. And when we settled in our hotel rooms, he would come to me and excitedly tie his dirty socks or any clothe around my eyes before disappearing for her to find him. He would hide in unexpected places like on a wall and still expect me to find him. He would untie my neat braids and mess with my hair and there were those endless surprise birthday parties that we would do for each other…We shared such a special sibling bond that would live on for a long time afterwards,” Nafisa narrates nostalgically.

Her other childhood friend, Anar Gulam, made it a trend to visit Nafisa every weekend or on some weekends Nafisa would return the favour, and sometimes, she too joined them during their trips to Tsavo or Amboseli or wherever their next vacation adventure took them.

Life was not all that bad after all. Her parents raised her with a very positive attitude, with tremendous support and showered her with love such that she would never feel alone in her journey. Yet there were a lot of surprises yet to come…


Today we celebrate world spina bifida and hydhydrocephalus day. We celebrate the patients and warriors battling with the two. You are indeed an inspiration to many of us! TO BE CONTINUED. PLEASE STAY TUNED…