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“Sometimes, when Allah Subhanallah Wataala answers our prayers and grants us our wishes, He brings forth tests alongside those blessings. One could have prayed for a child for years, then Allah grants them one who is sickly or with special needs or very stubborn. Another could have prayed for a spouse, then they are granted one who really gets on their nerves or is poor. Another could have prayed for a chance to perform hajj or umrah, and then face many difficulties during the pilgrimage. Another could have prayed for a job, then got one with a merciless boss. Oftentimes, when this happens, we tend to focus on the challenges we are facing, forgetting it is a test from Allah.

Remember the words of Nabii Suleiman Aleyhi Ssalam when he said about the power and bounties granted upon him:

قَالَ هَٰذَا مِنْ فَضْلِ رَبِّي لِيَبْلُوَنِي أَأَشْكُرُ أَمْ أَكْفُرُ ۖ وَمَنْ شَكَرَ فَإِنَّمَا يَشْكُرُ لِنَفْسِهِ ۖ وَمَنْ كَفَرَ فَإِنَّ رَبِّي غَنِيٌّ كَرِيمٌ

“𝑻𝒉𝒊𝒔 𝒊𝒔 𝒃𝒚 𝒕𝒉𝒆 𝒈𝒓𝒂𝒄𝒆 𝒐𝒇 𝒎𝒚 𝑳𝒐𝒓𝒅 – 𝒕𝒐 𝒕𝒆𝒔𝒕 𝒎𝒆 𝒘𝒉𝒆𝒕𝒉𝒆𝒓 𝑰 𝒂𝒎 𝒈𝒓𝒂𝒕𝒆𝒇𝒖𝒍 𝒐𝒓 𝒖𝒏𝒈𝒓𝒂𝒕𝒆𝒇𝒖𝒍!

And whoever is grateful, truly, his gratitude is for himself; and whoever is ungrateful, certainly my Lord is Rich, Bountiful.”

Will you be grateful for the blessing? Will you be patient with the tests? Will you acknowledge Allah’s power and mercy in all that you have and do? Will you still praise Him? Will you remain steadfast and firm in your faith? Will you trust Allah’s plan?!

Indeed, we have so much to be thankful for.

Alhamdulilah for all that is gone. And all that we own. And all that is known and unknown.

الحمد لله حمدا كثيرا طيبا مباركا فيه.”

Just a couple of days ago, I wrote the above piece on my social media pages. It was just a random contemplation of life events. I didn’t expect that soon after I’ll meet the human manifestation of my post. And when I did, I was nothing short of stunned by the embodiment of patience right in front of my eyes.

Sister Zainab, just like any married woman, yearned to be a mother. She prayed for a child. She sought medical expertise on how to get a child. But she failed, again and again and again. Four years later, the Bushra came. By Allah’s mercy, she was finally pregnant. It only made sense that she would call her child Bushra- Glad Tidings, because that is what she was. Good news. A reward for her patience.

However, Zainab had such a complicated delivery that the child had to be pulled out of her womb. Bushra didn’t cry for hours. Zainab thought her baby was already lost, but Allah had other plans for her. She miraculously made it through, but there was more awaiting both mother and child…Bushra was born with severe Cerebral Palsy. 

Without knowing it, our sister’s life took a total turn after that. Her entire time and energy had to now revolve around her fragile baby who couldn’t see, move or communicate like other children. For years, Zainab carried her child everywhere. To the toilet, to the hospital, to therapy sessions, to Ruqya sessions…her life fully for her child.

Soon enough, rumours from relatives and neighbours emerged. Bushra was bewitched, she has been made a ‘kiti’ bla bla…The suggestions to visit a witch doctor to cure her child followed, while others slowly avoided her and her child entirely. Even when they would hear Bushra cry painfully, they would leave her mother to return to tend to her. It was only her mother, apart from her husband, who supported them greatly in raising Bushra. Despite having her own health complications, Bushra’s grandmother dedicated her life to helping her daughter and son-in-law. The three of them felt alienated and the stigma they have faced as a family has been real.

Being a believer, Zainab opted to put trust in her Lord and do what she knows best; pray and do more research. Zainab was always looking for ways to improve her child’s health. She attended any health seminar she heard of that was related to Bushra’s condition, and read books and research papers about it.

It is through her constant reading that she came across ‘Regenerative Brain Cell Therapy’ which has been able to assist those with severe conditions like Bushra. It gave her hope, yet it seemed like such a far-stretched option for her. She didn’t know where to start, whom to talk to, or even where she’d get the money for the treatment. Yet the thought of it lingered in her head for years, until one day when the specialists came from India to Mombasa and did a seminar about the therapy treatment. For Zainab, that was Allah making things easier and clearer for her. She was now more determined to find this treatment for Bushra, more than ever before. She thereafter travelled to Tanzania for an international health forum for ‘Autism and Neurodevelopmental disorders’ to learn more about regenerative brain cell treatment. 

You’d expect that for a woman like her, with all that she has been through, she’d be frustrated, miserable and sad. But the spirit of imaan in Allah glimmers in her eyes. She has so much belief that Allah will her through it all. That it shall get better. One thing she kept repeating to me was, ‘I have to have faith. There is no other way.’ And I’ve thought about that a lot ever since. Truly Allah does not burden a soul beyond what they can bear.

Here was a woman who could have chosen to just accept her daughter as she is and give her the medications to just manage her condition. Or she could have listened to those misguiding her into the desperation of seeking help from a witch doctor. Or worst of all, she could have abandoned or neglected the child, like other parents do. But here she was, doing everything possible in her power to make life for her daughter just a little more bearable, a little less painful, all the while seeking Allah’s pleasure.

Despite all the challenges, Allah Subhanahu Wataala never seized to bring good people to help them; sometimes financially, sometimes emotionally, sometimes with ideas, and sometimes even physically. There was especially one friend of Umm Bushra who would always look out for Bushra’s needs and help consistently. For this, Sister Zainab expressed her deep gratitude for Allah’s mercy, and sincere duas for everyone who has ever extended their kindness to them.

Throughout the one hour that we talked, Bushra was lying beside us with the sweetest smile, her dimples revealing, moving her limbs playfully. Sister Zainab says to me, “She loves smiling mashallah. Always smiling. I worry about her sometimes. Right now I can carry her around because she is still young, but she is growing older. She will become heavier and her needs will change. Sometimes she is bitten by an ant but since she can’t speak, she just cries so intensely, and I have to figure out what could be wrong. This Neuro Regenerative Rehabilitation Therapy is not a cure but it will help her move better. She’ll be able to at least sit up or perhaps walk, even if it is by stumbling. I have read deeply about this treatment, I know the pros and cons, and I want to tawakkal with it. The Indian doctors explained that the earlier she gets the treatment, the more effective it is. And because she is growing older each year (turning 7 this year) I really want us to travel this same year in shaa Allah.”

Here’s our beautiful, lovely Bushra. Allahumma Bareek

Umm Bushra needs to raise 2 million Kenyan shillings for the entire trip to India. From tickets to visas to accommodation and the treatment itself. Unfortunately, her husband is struggling financially with no stable job and Zainab has no other income since taking care of Bushra is a full-time job.

As a human being I look at that amount and think ‘Mahn, how will we raise that amount of money?’ but then I look at her patience and imaan and I remember that Allah is great and good, and very much capable of bringing miracles. 

Here’s a hopeful, devoted believer and mother seeking our help, I truly pray that we come through for her. Assist in any way you can, and please spread the word!

Let’s do this!!! Her hospital letter and donation details are below:

Abu Huraira reported: The Messenger of Allah, peace and blessings be upon him, said, “Whoever relieves the hardship of a believer in this world, Allah will relieve his hardship on the Day of Resurrection. Whoever helps ease one in difficulty, Allah will make it easy for him in this world and the Hereafter. Whoever conceals the faults of a Muslim, Allah will conceal his faults in this world and the Hereafter. Allah helps the servant as long as he helps his brother…” (Ṣaḥīḥ Muslim 2699)

By: Naima Baghozi

Photo Courtesy: https://s-media-cache-ak0.pinimg.com

#7
After visiting their daughter, the parents took Dasi and went back home. They entered their house with real excitement, anticipating the return of their daughter the next day.

Along the way they bought some fruits and whatever they required for the great welcome of their daughter. They could hardly sleep that night with excitement. Very early the following morning they all set out to collect Sahira from the hospital. Upon arrival, she too was so ready waiting for them. All her medicines were packed in a plastic bag while her little belongings were already in her red duffel bag.

After the farewell to the doctor and nurses, they were off on their way home. Sahira couldn’t wait to get home for she had really missed it; however she wondered how she would climb that little flight of stairs. She had quite a surprise when their car stopped at a little rump next to the stairs. Her eyes moistened a bit and knew that her family had really been at work and that the changes she was undergoing, they were too.

Her father helped her out of the car and helped to wheel her over the rump and straight into the house they entered. She immediately noticed all the changes that had been made for her and realized how much love they shared as a family. Her bedroom was the best and of course, this was solely her mother’s work. She was so grateful to both her parents and to her brother for the comforts they have provided her.
The changes were tough for the whole family and it took them a little time to get used to their new lifestyle. But getting used they did and they tried their best to be as comfortable and happy as could be.

Sahira took her medicines without any fail and was taken for her physiotherapy twice a week as per the doctor’s instructions. She did without any fail as she was really determined to get well and be able to walk by herself again.
Days turned to weeks then into months until after six months or so the doctor called her parents again to have a discussion with them. So, the parents came into the hospital and went straight to the doctor’s office where they found him with the physiotherapist awaiting them.

After greetings and after being seated, the doctor looked at them, smiling and said:
“The reason for my calling you in today is to give you good news, that Sahira is now ready for the operation.”
“Oh really doctor?”
“Yes maam, she is very ready. The therapy which we were doing was very successful and to be honest, your daughter’s determination was what really made it possible for the operation to be done now,” the physiotherapy replied.
“So when do you plan to do the operation?” the father asked.
“In two days time God willing. So I will need you to bring her in tomorrow evening. She needs to sleep here so that early the following morning we can prep her as we intend to operate on her very early indeed.”

The parents agreed on that and stood to go home to explain to their daughter of their arrangements. The next evening, they left their home with excitement but equally nervous. At the hospital, Sahira was taken to her room and her family stayed with her a little while and then about nine o’clock they had to leave but her mother decided to remain with her. Her father and brother would come back early the following morning.

The D-day was finally here and it dawned on the whole family with great expectations. The moment finally came for Sahira to be wheeled to the theatre and the family had a small prayer before she was taken away. The family followed behind, offering Sahira all their support and giving her courage.

All in all, the operation took a little over five hours but to Sahira’s family it was like ages. They had such anxious looks on their faces and her father was pacing up and down in front of the theatre with such a worried look on his face.
Finally, the doors of the theater were flung open and out came the doctor looking very tired. They all rushed to him with question upon question.
“Doctor, how did it go?”
“How is my daughter?”
“Was the operation a success doctor?”
“Please doctor, take us out of this suspense…”
“Okay, okay. Please give me a chance to speak. The operation was quite a success but she is still unconscious. Soon, they will take her to the recovery room but please see her for just a few minutes and please, be very quiet okay?” the doctor said.
“Okay and thank you so much doctor,” they all replied in unison.


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As the doctor walked away, the theater doors were flung open again and out came the nurses rolling the trolley with Sahira on it but still unconscious. They all followed behind to the recovery room where they were politely asked to wait outside first as the nurses props her up on the bed.

After a few minutes the nurses came out and told them to go in but to be very quiet. So they did just that, only too happy just to be near her. Two hours passed before Sahira showed some signs of coming to consciousness. Her mum quickly sent Dasi to call the doctor.

Everything turned out well and after a couple of days she was allowed to go home. Of course the walking by herself would take a little more time. She had to first heal from the operation and then do some special exercises before she could contemplate walking again. It would be slowly at first, like a small child starting to learn how to walk for the first time.

All this she did with such excitement and happiness and in about a month she was as good as new, like her old self again. Her parents and brother were the happiest to see Sahira being her joyous self again and thanked God for letting them see her this way once again.

As for Sahira herself, she couldn’t be more thankful to God for the blessing of being able to walk again and of course to her parents too for being supportive and always being there for her.

Finally she said to them:
“This experience has really been a life changer for me and from now onward, I will certainly look at life in a totally different way. Thank you all so much.”
She hugged them all and they hugged her back in return, with their faces full of joy and laughter.

#THE END


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By: Naima Baghozi

Photo Courtesy: https://s-media-cache-ak0.pinimg.com

#4
In the meantime Sahira’s parents were seated in front of the doctor’s table facing him with worried looks on their faces. The doctor looked back at them with solemn look on his face which made the parents worry even more.

Sahira’s father was the first one to ask:
“Doctor, what is wrong with our daughter? Why are you looking like that? You have really got us worried even more now.”
The doctor looked at them silently at first and then started to explain slowly to them, “Well, I wish I had good news to give you but unfortunately it’s not so as per the results of the x-rays…”he paused a bit and Sahira’s mother pleaded,
“Please doctor, don’t keep us hanging anymore – I, for one can’t stand this suspense anymore.”

So the doctor took out the x-rays and placed them on the lighted board and started demonstrating to them while explaining,
“You see, this is Sahira’s spinal cord and right here at the bottom you can see the damage that was caused by the accident – can you see?”
The parents could but only nod their heads upon seeing this as they were too emotional to say anything.
“So because of this damage, Sahira is not going to be able to walk…”
At this point the mother would have literally fallen down, had it not been for her husband’s support. The doctor rushed to help her back to the seat and placed a glass of water in her hand for she had turned quite pale. Sahira’s dad said to her,
“Drink the water in small sips and try to calm down so we can come to terms with this situation,” and then he turned to face the doctor once again and asked him,
“So doctor, do you mean to tell us that our daughter is not going to walk again? She is ever going to be crippled?”
The doctor replied,
“It is not a complete hopeless case, we first need to treat all her cuts, bruises and not forgetting the broken ribs. With her condition, we need to take one step at a time. After we have cured all this then we can start with the situation of her legs and the treatment of her spinal cord. She will also definitely need physiotherapy which luckily we can provide right here at our hospital.”
The parents almost spoke simultaneously with great excitement,
“You mean our daughter will be able to walk again doctor?”
“Well, we have to be optimistic and a lot depends on Sahira herself,” the doctor said.
“What do you mean?” asked the mother.

“First and foremost, while we are curing the wounds, I will have a specialist analyze her for she does not seem to remember a thing about the accident. The fastest she comes to terms with the situation, the better it will be for her. For the clearer her mind is , the better for her for she will have the will to move again.”
The doctor kept quiet for a moment and continued,
“With the physiotherapy and exercises, we will be able to anticipate on the major operation which we will have to do in order for her to walk again God willing.”
The parents looked at each other with hope in their eyes but then…
“An operation?” in a chorus they asked – like they just realized what the doctor had said, for all their ears could hear was that their daughter could walk again.
The doctor said, “Yes, in her case it is very necessary to have an operation if she is to walk again.”
“But is that operation guaranteed for Sahira to walk again?” the father asked.
“There are never hundred percent guarantees in any operations even if it is a minor operation. However, we do what we know is the best way and the rest we leave it to God.”
“Doctor, what do we need to do?” sounding quite desperate.
“Don’t worry too much, Sahira doesn’t need to see either one of you or even her brother looking desperate or worried or even with long faces. You have to try your best to cheer her up,” the doctor calmed him down.

The parents nodded again in acceptance.
“You have to make sure she is as comfortable as you can and she should also eat well. Positivity is a very important aspect around her and she shouldn’t be sad, okay?” the doctor continued to say.
“Okay doctor. We will make sure we follow your instructions as best as we can.”
“Very good then, don’t forget all this is going to be quite a change to her and you all too – even if for a little while.”
“We understand doctor,” the father said.
“Okay, now here is the most important question, who will give her the news? Me or you?” the doctor asked.
The parents were lost for words for a moment then…
“It’s better if we are the ones to tell her,” replied the father.
“Very well, but if you will need any assistance, I will be right here in my office. Ah! Before I forget, she also has to remain here for at least one week to ten days for treatment and observation,” the doctor said.
“We understand doctor and thank you for your advice,” the mother said.

#5
Back in Sahira’s hospital room, she still looked very sad and in deep thoughts….
Dasi called out to her, “Sahira, Sahira…” she seemed to come from quite afar, “Yes, what is it Dasi?” he asked her “What is it? What are you thinking about?”

She replied, “ My mind is still on the poor driver- I am thinking of his family too. What must they be going through now? I just can’t help but think I am the cause of his death for if I hadn’t been stupid enough to stand right in the middle of the road then all this would have been avoidable…”

Dasi looked at his sister with such a disbelief look on his face and then admonished his sister.
“Sahira, will you stop all this nonsense…whether you like it or not, you just have to stop this belief that you are responsible for this man’s death,” he paused a bit then continued, “you mean to tell me that with the kind of speed that man had he wouldn’t have hit another person or something else and end up dying anyway? So, stop kidding yourself here and thinking you are the culprit of this accident…” he ended up with a sigh.

Sahira just decided to look at his brother in complete silence. Thus, when their parents entered the room, they found their two children in tensed silence. Dasi stood up immediately and started shooting questions at his parents.

“Dad, mum, what did the doctor have to say about Sahira’s situation? Will she be alright? Will she be able to walk again? …”
His dad cut him short, “Whoa Dasi, will you calm down a bit and give us a chance of explaining to your sister and you of course of what’s going to happen from now onwards? …”

For the first time since her parents entered the room, Sahira opened her mouth and spoke, “What is going to happen, dad?”

Both the parents came nearer to their daughter and with such compassion on their faces; they calmly related to her what the doctor told them from the beginning to the end. All this time, Sahira’s face was showing different expressions, from horror to dismay, agitation and even from hope to hopelessness. Finally, tears were quietly rolling down her cheeks and she said to her parents in such a flat tone which tore her parent’s hearts.

“I did not realise this nightmare would actually turn into a real life changer for me…” she then slowly closed her eyes and remained silent.
Dasi stood in silence but in quite a shock and wondered what he could do best to help his beloved sister. He knew he had to do something worthwhile in order to help her get through these very difficult days ahead…not only for Sahira but for the entire family.

Really, in a matter of speaking, these difficult days ahead of them will affect each and every one of them one way or another. Their lives will certainly change, their lifestyle from now onward will revolve around Sahira- for the betterment of her well being.

Sahira had no choice but to accept the situation as calmly as possible for she knew right at the bottom of her heart that this is the only solution to her recovery and to her mobility again. So she slowly opened her eyes again and looked at her parents and brother and told them, “I know this is very difficult for you all and probably more to you than to me for you cannot bear seeing me like this…but I accept my situation and I am ready to undergo all treatments just so I can see those beautiful smiles return to your faces. I have faith in God and I feel with his grace everything will be fine.”


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#6
The treatment started with immediate effect and the psychiatrist was brought in too so he could establish the blockage of the accident scene in Sahira’s memory.
Day in, day out, visitors were pouring in the hospital to visit Sahira, from family to friends, to neighbours. On top of that were the many flowers she was getting, one would think it was a princess’s room. At least, this cheered her u and made her take her treatment positively and thus, making her recover even faster. The physiotherapist was happy with her progress and the best came when in the middle of the week, the psychiatrist and she had a breakthrough. Sahira held on to her head and screamed while tears were rolling down her cheeks.

“Doctor, doctor, I can remember…I can remember everything…from beginning to the moment I was hit.” She ended with real heavy sobs and the doctor calmed her down. He let her take it all out for he knew it was for the best. The doctor then sent one of the nurses to call her doctor, who came running.
“Is it true what I heard from the nurse? Sahira has finally recalled what happened to her?” he asked his fellow doctor with real excitement. His colleague was all smiles as he replied,
“Yes doctor, she has finally recalled all that happened but she has a bad headache. I think we should give her some painkillers and let her rest for a while before we continue with anything else, don’t you agree?”
“Yes of course. I completely agree with you.” The nurse was then instructed to do just that. The doctor then left for his office to call and talk to her parents of the latest development. This news made the parents and Dasi overjoyed and thanked God for this wonderful progress.

In the mean time Sahira’s dad and Dasi were busy building a rump for Sahira next to their little staircase so when she comes home from hospital, there won’t be any discomfiture for her in her wheel chair. This way she could wheel herself in and out without difficulty. Her mother was busy arranging her bedroom to make it as comfortable as possible for her. They did not want their daughter to feel useless in anyway and of course they were hoping it will be a temporary situation for them. The accident had really become a life changer, not only to Sahira but to them all as a family and however temporary it may be they have to adapt to it.

Therefore for the time being, they had to clear a number of their furniture and make everything accessible for her when she gets home. Getting home had seemed a far off thing at first but with the full memory recovery of Sahira, the doctor decided it would be best to allow her to go home for he figured with familiar surroundings she would have an even better chance for a quicker recovery.

The following morning, when the family came to visit, the doctor called the parents to his office whilst Dasi went to his sister’s room.
“Please sit down I need to speak with you…”
“Is everything okay doctor?” Dasi’s father asked.
“Ah, yes. Don’t worry. As I told you on the phone yesterday about the return of your daughter’s memory, I am very pleased with the situation and have decided it best to allow her to go home and be in familiar surroundings and faces. With this, she may have a chance of a better and a much quicker recovery.”
“Really doctor? When can we take her home, today?”
“Calm down, calm down…I can only allow her to go tomorrow morning. We have to prepare her properly and counsel her knowing that now her life is a bit changed. Going home in a wheel chair is not the same as on her two legs, am I right?” the doctor said, laughing.
“Of course doctor,” both parents replied.
“So I will give you some medicines for her and you will have to bring her twice a week for her physiotherapy until when we can determine as to the right time to perform the operation.”
“Very well doctor, we understand. Can we now go and see her?”
“Yes of course,” the doctor replied with a smile…


Await for the last piece of Sahira’s story soon…how will be the end of her story?? Stay tuned 😉


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Continuation from ‘Unbroken Wings- chapter 1’: http://lubnah.me.ke/unbroken-wings/

Photo Courtesy: https://angypaints.files.wordpress.com

“My parents have given me tremendous support. They never stopped me at any juncture to pursue whatever I wanted to do. After class eight, I couldn’t go on with secondary education due to my condition but I joined Burhaniya finishing college instead. I did a two years home science course there where I perfected my art of embroidery, crotchet, fabric/glass painting amongst other skills that I learnt,” she says as she looks at her art pieces, longingly, that are still hanged on her bedroom walls, “Unfortunately I stopped doing art when I started venturing into other things in life, but I still love art like I always have.”

Nafisa didn’t stop spreading her wings by learning art; she went on to seeking a job where she first worked at a Celebral Palsy centre situated in Tudor in 1994. She however had to quit because the pay couldn’t fit her needs and also it being a tough job handling the challenged children. She thereafter studied several packages at Aries Data Systems, she got a job at Compucon Ventures Ltd and worked there for two years before the company closed. Not giving up, she went on to work at Tyre and Tread ventures, worked there for a while before moving on to Marajani Communications where the working hours and days were challenging and thus couldn’t stay there any longer too. Her last job was with her father at Hatimi Joinery works Ltd.

Besides all that, she was also a member of the Rotary Club of Mombasa since 1998. The club brings people together for beneficial activities, fellowship and to help the needs of others. Nafisa became part of the Rotaract wing which is the youth wing of Rotary club i.e. below 30 fellows. She was given the responsibility of Director of community service three months after becoming a member, later she became its president in 2000 and 2001. Again in 2009, she joined ‘Inner Wheel club of Mombasa’ which is a group of the wives and female relatives of Rotarians. In this group she served as a president for two years.

“Nafisa used to do wonders at the Rotaract youth wing. She used to come up with great ideas, organize everything, work tirelessly and make things happen. They used to call me her transport manager for I would always be the one to pick her up for meetings and all events. I tell you, Nafisa is the strongest woman I have ever met. She never made me feel her disability or even allow me to pity her at any moment,” Manoj, her long-time friend says.

“My sister has always been doing things that not even us; the normal and healthy beings are doing. While she was still at Rotaract, she once came up with this idea of feeding handicapped children during Christmas. She arranged everything and made packages for the children by the help of other Rotractors. During that Christmas, we fed 1200 children. It was a huge success. It was because of her great ambition and passion that she was sponsored by Rotary International for a tour to Zambia, Malawi, Mozambique and Zimbabwe,” Hussein, Nafisa’s elder brother narrates.

“What Nafisa has done is prove to me and everyone else that disability is not inability. She physically participates in all events. You know we have so many people who have roads named after them, hospitals, schools yet all they did is give out  large cheques while someone like Nafisa always goes out of her way to do the charity projects. She is resourceful, determined, kind and caring; always has great ideas and makes sure she is present to supervise all her projects. Nafisa works even when it is harmful for her body. She is indeed one of the unsung heroes,” an ex-rotarian says.

In 2006, Nafisa went on to do something that was going to change her life forever. She organized a stage drama by the name ‘Dear Diary’ which was highlighting the challenges of the disabled. The play revolved around Hanifa, who has lived with a physical disability all her life. She is forced out of school at an early age due to her failing health, shattering her dreams of becoming a lawyer. She then meets Zaheer and falls in love with him. But Zaheer did that one devastating thing; he dumps Hanifa for a ‘perfectly created’ lady. The play was sponsored by Nakumatt holdings, directed by Namanje and Godiah, stage managed by Muscat Sayye and produced by Nafisa herself. It was first acted at Little Theatre Club and the play brought a new untouched topic to people’s minds; the hidden feelings of the disabled.

The play won the hearts of many and the start was magical. The play opened with the main character, Nafisa, being wheeled onto the podium to receive an award. But she pauses at the base of the staircase and rejects her guide’s offer to lift her onto the stage. She then read what she calls a speech from her diary:

“I am standing before this staircase of confusion with a task of transforming my thoughts, to a destiny and the access to this wonderful destiny lies on the ability of this wheelchair. I have struggled all my life to make it to the peak, and I am standing at the foot of my dream to receive a star of honour for serving diligently towards a humanity cause. They are giving medals to humanity-generals up there (points to the podium), but the same problem I have fought all my life (pointing at the stairs) is barring me from receiving my priceless trophy.”

The play was staged again thrice at Little theatre club again, then done again twice in 2008 at the same venue while the last two shows were staged in 2009, in Kenya National theatre in Nairobi.

“My aim for Dear Diary is to change the perception of the society of people with disability. And another thing that inspired me to put up my life on stage is that every time I visit the United Kingdom, I get a completely different experience as there are facilities for the physically disabled. I feel that if a quarter of the facilities there were put in place in our country, our life would be better for us.”

In 2011, she formed an initiative with the same name as her play, ‘Dear Diary Initiative”. It is a non-profitable community initiative to advocate for the welfare and rights of the disabled. With that, Nafisa allowed herself to transform from being a sensitive girl with unachieved dreams to a strong, passionate lady making changes.

“Nafisa dedicated her life to Dear Diary. She still does. And without bias I would say, Dear Diary is Nafisa more than it is a group. She is the face of the initiative and she has worked without paying herself any penny from what they are offered. See Dear Diary depends entirely on sponsors and well wishers. Nafisa is not working anywhere else to earn herself any extra penny. Yet still, she would never accept any money for herself from Dear Diary Money. Even the religion allows us that for the collector of charity gets a portion, but Nafisa would never allow that. She does this entirely as charity. She is strong willed and a go-getter,” Mustan, Nafisa’s other brother says.

Without knowing it, Nafisa was inspiring many other disabled people AND normal people. To date DDI projects have been so many and her principle was that, disabled people do not need us to give them food and money and our sympathy. But they need us to help them in ways that can make them stand up for themselves. Be strong enough to venture into the world. Hence, Nafisa’s strategies in DDI was not only providing food but more important things like albino caps, educational text books in brail, reflective jackets, wheelchairs, mosquito nets among many other things. This is precisely what made Nafisa outstanding. She knew exactly what her fellows needed. She is empathetic and looks beyond the corners of the box. She wanted to make a difference and she did. She still does.

“I have known Nafisa since childhood and I was there too when her story was first staged. I was the one who was playing the background music of the play. I have been with her through many phases of her life and have always considered her my sister. From her childhood where she used to like scrabble and keram and hide and seek, to the days we used to meet at her grandparents’ farm in Mariakani during holidays, to the times she would feel low due to loneliness…I can tell you that she is very aggressive, hardworking, with a vision. She never asks for favours from anyone not unless it is entirely above her powers. Otherwise, she is very strong and independent…and this is how she has been able to make DDI something amazing,” Aziz, her other childhood friend says.

On September 2015, Nafisa and her Dear Diary team organized a charity fashion show to raise funds for physically challenged people at Fort Jesus in Mombasa. All the participants were people living with a disability. The event was attended by hundreds of people, including Mombasa County gender and sports executive Mohammad Abbas and director of gender and youth department Esther Ingolo.

“When she first told me about the fashion show I have to admit I wasn’t really sure how it would turn out but it was a great success! I wasn’t surprised though, this is Nafisa. She has always been strong and firm and she never gives up. She is truly a source of inspiration,” Juzer, one of Nafisa’s relatives and close friend says.

“Just at the last moment, some of her colleagues at Dear Diary dropped out of the project. It became a panic moment because it was unexpected. My other brother called me that Nafisa needed us, so we rushed in to help. But as always Nafisa was positive and ensured that the fashion show worked out amazingly as planned,” Hussein recalls.

“The use of the word Outstanding would be undermining Nafisa. She is more than that.  Why? Usually when a person is challenged, they usually are either trying to help themselves or are looking at others to help them but Nafisa is out to help others.  I believe she would have done more of charity work if not impended by her challenges but again I don’t think an abled person would be doing so much she is doing right now. But then again you would only feel the pinch if you wear the shoes.

I also remember when we were in our early adulthood; she joined Leo Club where I was the chairman and would be game for any activity or picnics we would plan. Never once did we have to make any special arrangements for her. Whilst as usual a distance came in-between us till the time she joined the Leo Club. Again I moved to Nairobi and only got back when I joined DDI. For the past 3 years we are in touch almost on weekly basis with the common factor being the charity work.” –Muslim

As such, Nafisa was increasingly creating hope in many other people’s lives. She was restoring faith in humanity in many souls…

TO BE CONTINUED…

Photo Courtesy: http://www.doctorwellgood.com/

Dyslexia is characterized by difficulty with learning to read fluently and with accurate comprehension despite normal or above average intelligence. It is the most common learning difficulty and most recognized reading disorder. There are three subtypes of dyslexia, ‘auditory, visual and attention’. Although dyslexia is the result of a neurological disorder, it is not an intellectual disability and it occurs at all levels of intelligence: average, above average and highly gifted.Have you ever heard of a disability yet it is at several times considered a gift? Yes, dyslexia it is; one of the common yet not known disabilities that have miraculously led to many being outstanding in the society.

Among’st the symptoms of dyslexia are:

  • Delay in speech in early childhood
  • Letter reversal or mirror writing
  • Difficulty knowing right from left and directions
  • Easily distracted by noise
  • Difficulty identifying rhyming words
  • Very poor spellings
  • Difficulty in blending sounds into words

Adolescent and adult dyslexics may have trouble with summarizing a story, memorizing, reading aloud and learning a foreign language. Adult dyslexics tend to be slower in reading even when they have good comprehension.

There is no cure for dyslexia but the victims can learn to read and write with appropriate education or treatment. Several special education and therapies approaches have been developed for students with dyslexia. Adaptive technology such as specialized computer software is used. There are controversial treatments such as nutritional supplements, special diets, and homeopathy and osteopathy manipulation.

The most interesting part of this all is that quite a large number of our stars, role models, musicians, artists, actors, scientists, athletes and many more were victims of dyslexia and yet they were able to overcome it and achieved what many non-dyslexic couldn’t. Amongst the famous victims examples that are always going to be remembered are as follows:

Agatha Christie- was the world’s bestselling book writer of all times equaled by Shakespeare. Her books sold approximately 4 billion copies worldwide even though she suffered from dyslexia. This in no way stopped her from being creative and learning how to write and her mystery novels have always been some of the most captivating of all times.

Albert Einstein- was one of the most known scientists and inventor of all times. He suffered from dyslexia mainly because of his bad memory, his constant failure to memorize the simplest of things, his inability to even tie his shoelaces properly and even not remembering the months of the year yet his scientific contributions and theories still have a great impact in our science knowledge today.

Hans Christian Andersen- he was an author of children’s fantasy books such as ‘the emperor’s clothes, the princess and the pie, Thumbelina, the snow queen, the ugly duckling and the little mermaid. He was a victim of dyslexia and showed the world that when you want something, nothing can stop you from obtaining it. His books have been translated into many languages and are distributed worldwide in millions of copies.

Walt Disney- Walter Elias Disney was an American film producer, screen writer, voice actor, animator, entrepreneur and philanthropist. He was known to have dyslexia, a learning disorder characterized with reading difficulties but yet still, he emerged as one of the most influential and innovative figures in the field of entertainment during the twentieth century.

Tom Cruise- the famous American actor and film producer was also a dyslexic which partly led him to be abused as a child. His father went hard on him when something went wrong and was also a victim of bullying at school. He had gone through fifteen schools in twelve years but yet still emerged to be appreciated by the society by his work.

Other famous individuals who were victims of dyslexia are: Orlando Bloom-actor, Pierre curie-physicist, Thomas Edison, Michael faraday- scientists and inventors, Leonardo da Vinci-artists/designer/architect, Pablo Picasso, Cher- Musician, Muhammad Ali-boxer, Steven Spielberg- Film maker and Abhishek bachan-actor

These individuals and all the others not mentioned here have proved beyond doubt that disability is NOT inability. When life offers us challenges then let us make the best use of them to emerge stronger that the challenge itself and thus, become outstanding in the community.

 

 

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